Life At Home

Well, I have been home for 2 1/2 days now and I'm doing pretty good. The biggest challenge was figuring out when to take my medications - there are 10 of them! I was only given two weeks worth in case the chemo meds need to be changed. The total was a little over $4300.00.

I am scheduled to go to Hopkins every day this week (including weekends) to have my blood drawn and tested to make sure my counts are still where they need to be. So far so good. By counts I mean white and red blood counts and platelets. I can usually tell by the palms of my hands how well I'm going to fair. After the first week they will let me know day-to-day whether I need to come back the next day. I can't drive so hitching rides has proved to be a pain, but everyone is pitching in and taking turns. You see, I am there for 2-3 hours waiting on the lab. They do try to make you comfy though by offering TV and a recliner. Maybe I'll finally finish that book I started some time ago.

The process has started in finding a bone marrow transplant donor. My siblings are being tested and hopefully one of them will be a match. The National Bone Marrow Registery is also an option. I understand that the matching process takes quite a while so I don't anticipate anything happening anytime soon. Of course, I didn't expect to be home this quickly either.

I decided to cut my hair short even though I'm uncertain if my hair will fall out or not. I am tired of dealing with all this hair - believe me, short is a lot easier. I'll include a picture as soon as I can get one up.