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It's official - I'm home and so very happy to be here. My ANC was only 137 on Saturday so I was quite surprised that the docs released me. They usually prefer to keep patients until it reaches 200, but Dr. Jones said he had to look at the entire picture and how well I had done overall. Since then I have been visiting the clinic each day and my numbers as of today are great - 33.3 Red/1010 White/42K Platelets/ANC 525! Good Numbers for not even reaching Day +21 yet! My medications include an anti-viral and tomorrow I start on Bactrim another type of antibiotic. After my counts become more established (around Day +30) I'll start on Gleevec once a day - the oral chemotherapy medication that I was taking before my BMT. I'll be on Gleevec for the rest of my life.
Since being home I am more tired than ever though. The confines of my room at JHH were nothing compared to steps and dressing for clinic each day. Although Ray is taking good care of me, I am exhausted and nap every afternoon. I'm told it's all quite normal and that I should give in to it and enjoy it while I can. I am.
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Wow Beverly! Congratulations and welcome home! How wonderful. I just sent a note via FB thinking you would be in the hospital for a bit longer. I hope you don't get a spike of a fever. I know you would rather not be spending any more time in the hospital. Will continue to send healing thoughts your way. If you get to a point where you'd like company let me know. I'm guessing it will take a while before you have enough energy for company other than family and close friends. Take care.
ReplyDeletePatty
I'm so glad your home. You're amazing!!!
ReplyDeleteLove, Kim
This is such fantastic news. I'm so happy that you are settled at home. You are in my prayers always. Keep up the good work.
ReplyDeleteLove,
Lynne
Bev, it sounds like everyday is better and better, just please make sure you get your rest. Like you said "staying in the hospital is a lot different than being home"...YIKES..those steps alone! LOL
ReplyDeleteLuv, Susan and Timmy
gma bev! I am so happy to hear you are doing well, i hope you know that i think about you constantly and cannot wait to see you, i love you with all my heart and day in and day out as i read this i am again totally taken back by your grace, courage, and strength, you are a beautiful woman inside and out whom i look up to tremendously. you amaze me. i love you so much and continue to keep you in my prayers.
ReplyDelete<3 always,
sammy.